Directory IndiaPress
08 September, 2008 

 
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Top: Health: Conditions and Diseases: Neurological Disorders: Muscle Diseases: Spinal Muscular Atrophy  (16)

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German  (7)  


  • Elizabeth's Page - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
  • Families of SMA (Spinal Muscular Atrophy) - International support group and resource center for this disease, includes current research.
  • FightSMA - Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
  • GeneClinics SMA Information Page - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
  • Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
  • Jennifer Trust for Spinal Muscular Atrophy - Providing support, information and research news for UK families.
  • Our SMA Angels - Large on+line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
  • The Sean W. Venezia Foundation - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
  • SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) - Werdnig+Hoffman.
  • SMA2 Ian Paul - I am two years old and I have SMA2.
  • SMA Support Inc. - A tax+exempt, not+for+profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
  • Spinal Muscular Atrophy Foundation - Information on SMA, and the latest updates in research, treatment and funding.
  • Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
  • Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
  • Twins with SMA - Sam and Alex Bolton + twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.
  • Washington University of St. Louis: Neuromuscular - Provides detailed medical-genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.

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