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| DMOZ DIRECTORY |
See also:
- The Alkaptonuria Society - Information about this genetic metabolic disorder for patients and professionals. Includes FAQ and a registration page for sufferers.
- Genetic Interest Group - Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
- Joubert Syndrome in the UK - Support group for families of children affected with Joubert Syndrome.
- Moebius Syndrome Support and Resource - Information on a rare genetic condition, issues for children and adults, and a resource list.
- PiXiE - Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
- The Williams Syndrome Foundation - Information for parents, carers, and professionals about a non+hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side+effects.
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